A little help?

By: sonofabeach96

Sep 17 2015

Category: Uncategorized

83 Comments

Anyone out here in the blogosphere familiar with Working Memory Disorder?  I have a set of twins.  They were preemies, about 9-10 weeks early.  While in utero, placental shunting developed.  They were monitored closely for months before birth and our docs decided they had to be taken by c-section.  The smaller of the two had developed slower but is now doing well, physically, after initial cardiac issues after birth.  But we are being dealt another crappy hand just this week.  He’s been struggling with some school work, math in particular.  We decided to have the school psychologist do some testing with him.  We’re familiar with this process as our oldest son is autistic, so, been there done that with the battery of tests and forms.  But what she found is new to me.  She referred to it as Working Memory Disorder.  Huh?  Basically, he has difficulty with cumulative information retention.  It effects breaking large concepts down into sub-categories and understanding how the parts make the whole.  He reads well and can recall what he’s read.  But he has trouble phonetically breaking down words, even though his reading comprehension is not effected.  Math though, is a major struggle for him.  Learning multiplication tables is a chore, as its a cumulative task.

Anyway, we’ve googled this, and there’s very little info.  We’ve looked at Barnes and Noble for books on the subject.  Nothing.  We’ve seen one or two Pinterest sites about this.  But that’s it.  We just had this dropped in our laps a couple days ago.  If there’s anyone out here with knowledge of or experience with this issue, some tips and/or advice would be welcome.  I’m kinda hanging by a thread right now.  We are busting our ass to advocate for and assist our autistic son.  Now this!  The teachers are very little help because our kids aren’t perfect little students and they’re more worried about standardized testing than teaching anyway.  Anyone?  I’d love to hear from somebody on this one because I’m kinda strugglin’ here.  Not sure how much more I can handle.  Some info and positive words would be welcomed.

83 comments on “A little help?”

  1. idk, seems like new creative approaches to learning (seldom easy) may be the answer. a change in the way things are presented? nothing that hasn’t been said before, I guess. -_-; so much happens for me in a day that I seem to have a similar issue with retaining certain things in memory.

    Liked by 2 people

    • I hear ya. It’s not an IQ thing. He can learn, just differently. The teachers are optimistic but I’ll take a wait and see approach to what they do. We want to be proactive with what we do at home. Not much info out there.

      Liked by 2 people

  2. I have Dyscalculia which loosely translated is a form of Dyslexia in Math but more working number orientated I know this issue. I was told I wouldn’t graduate high school I got my Mastersm sometimes IQ tests and learning disorders are not the sum of us. Learning cannot be quantified. If you watch for deficiency and remain supportive then you do more than most. When old enough your twin can go under ADA and nothing will stop them. It didn’t stop me *(yes it was hard at times).

    Liked by 4 people

    • We saw this term on-line. My wife actually just found a website devoted to Working Memory Quotient that discussed Dyscalculia. I think this may be what we are dealing with. Thanks so much for taking the time to respond. Means a lot to me. 😊

      Liked by 2 people

      • I didn’t know for years i had it. I was a very smart kid but beyond awful at n ath, couldn’t pass anything math orientated or remember any number sequences and had severe number blindness. I expect whilst my memory is good there are specific deficits. It hasn’t held me back but it’s been g arder, a fight at times, but it makes you stronger, more determined to undo prehudices. My teacher for my MmmmNA said because of my number blindness I’d likely not pass. I was the top student when I graduated I went and told here be careful who you condemn. No test says everything if it did many of us would crawl under rocks. Your little one will find a way that is their own. If people believe in them they will not suffer needlessly I hope. Have belief in them. They will surprise you. Diet is useful as well and anxiety makes it worse but it can be managed.

        Liked by 3 people

      • We started him on dietary supplements a few years ago, fish oil and a probiotic. It’s helped his hyperness. They all get plenty of support here. But I don’t want his spirits crushed from school and test struggles, ya know?

        Liked by 3 people

      • Yes I do as I experienced that but with caring parents he’s more likely to have protection through a supportive home which is our foundation.

        Liked by 3 people

      • You’re good for my psyche tonight. Thanks for talking me outta my tree!

        Liked by 2 people

      • Always. My friend.

        Liked by 2 people

      • Hope I’m able to return the favor sometime. 🙂

        Liked by 2 people

      • Friends always do♡♡

        Liked by 2 people

      • Indeed they do! You know where to find me if needed! Thanks again for the help last night. You rock! 😊

        Liked by 2 people

      • When I see sequences I almost freeze I seem like an idiot. But we can learn to manage. They will too. If i can help you only have to let me know. ♡ at least they have two great parents who care.

        Liked by 1 person

      • Seems like we’re their only advocates. I hope we’re up for this new challenge. I’ve seen a tee shirt that’s a play off of Mother Teresa’s quote:
        “God doesn’t give you more than he thinks you can handle…he must think I’m a badass!”
        Beginning to think this very thing! 😃

        Liked by 2 people

      • Hahaha! I second that!

        Liked by 1 person

      • I’m a stickerholic. I need this in sticker form! 🙂

        Liked by 1 person

      • Oh me too!!

        Liked by 1 person

      • I put stickers on my car and truck, my coolers, the walls of my shed. I grab em whenever we travel. I’m at a loss as to what I can sticker up now! I made a post about a while ago and got some good tips. I’ve got a bag of unstuck ones, about 50 of them. I just can’t help it! I keep buying them regardless. 😃

        Liked by 1 person

      • I used to tell people I trusted people with loads of bumper stickers never knew why! Now I do!

        Liked by 1 person

      • 😃 Anyone not afraid to look like an idiot can be trusted, right? My wife finally barred me from putting anymore on our cars. I still buy em though. It’s a compulsion really. 😜

        Liked by 1 person

      • At least you’re relatively easy to spot!!!☆☆☆

        Liked by 1 person

      • Ha! Indeed I am! 😃

        Liked by 1 person

  3. My understanding is it’s also about how we form associations and thus. Memory. Because they may be different doesn’t mean anything necessarily bad. I will help in any way I can my friend. I’m sorry for how hard things have been. There is light at the end of the tunnel.

    Liked by 1 person

    • Good to hear this. We’ve dealt with so much with our oldest, and have finally accepted and adjusted to what it is. But then to be told another of our kids has an issue was a blow. My mind just went “Fuck, here we go again!”. I’m ok, just have to get centered a bit. Thanks so much for your help!

      Liked by 1 person

  4. here’s my 2 cents…1st, this is one dr’s opinion based on his knowledge, 2nd it appears i have math dyslexia./…i barely can add…algebra is out of the question…now, for resources…university of houston, 713-743-2255 may help, or maybe a local university…not sure where your at…finally, don’t accept this dr at face value, if he ain’t any referances…he may be blowing smoke for his thrills…

    Liked by 2 people

  5. I have memory issues that are diagnostically murky myself, and it is difficult to find information on memory disorders because the testing involved is too unethical to actually study it properly (memory is a much more malleable thing than most people realize). My best advice would be to try to find any information on chemical processes involved in that specific disorder, and then research those specific processes themselves. There will be much more research to find that way.

    The important thing to remember is that memory problems, while frightening, are not the end of everything. There are ways to manage them. With little information available, we have to get inventive sometimes to figure out how to manage each individual person’s needs, but we still can manage it. There are always more possible solutions and coping mechanisms out there. Don’t give up.

    Liked by 1 person

    • No, giving up is not an option. It’s all new to us right now. Just found this out this week. We need to educate ourselves a bit. You’re right, not much info out there. But we won’t be giving up, I can assure you of that. Thanks for taking the time to respond. Really appreciate it. 😊

      Like

  6. No idea friend about this. It’s good that you are doing your best to provide the best for all 🙂 if it’s dyslexia, then there’s a movie named TAARE ZAMEEN PAR in which it is shown how a kid suffering from it tries to tackle the world and be handled as a normal kid 🙂 Hope this helps 🙂

    Liked by 1 person

  7. This is from 2007 but it’s a handout a psychologist friend recommends regarding working memory and school: https://www.york.ac.uk/res/wml/Classroom%20guide.pdf

    A psychologist with whom I work recommends this conference: http://www.masp.mb.ca/events/assessment-of-working-memory-processing-long-term-memory-and-the-interventions-you-need-to-address-them-dr-milton-dehn/

    I know you’re not in Winnipeg but maybe Dr. Dehn has articles online…?

    I hope that’s helpful. Good luck with your self-education! And good for you for all you to do support and advocate for your kids.

    Liked by 1 person

  8. Reblogged this on honestme363 and commented:
    If anyone has any info or insight for the sonofabeach, can you please it on?

    Liked by 2 people

  9. I’m sorry to hear what you’re going through. I hope you find a way to handle it. I don’t think there’s anything wrong with none of your kids. We all are what we are. But some how someones has decided that if you’re not fitting the perfect profile there must be something wrong with you. It takes your whole life to figure out how you do things in the best way. I get angry when grown up says that kids has defects. How can they tell? Their lifes has just begun and almost every question is yet to be answered. And that takes a lifetime.

    Liked by 1 person

    • Thank you Anna. Yeah, I was freaking out a bit the other night. We’ve been through this all before with our oldest, who has autism. When we got this latest news it was like, “here we go again” and all the angst about their future came flooding back. Have since done some reading and have a better handle on it. Thanks for the kind words! 😃

      Liked by 1 person

      • I have, through my life, found out that there is not the one who did best in school that do best in life. Those who find out how to use their unique ability are the one who do best in life. That has very little to to with school results, that has more to do with how much support you get from people who believe in you. I wish all of your family the best of luck in life 🙂

        Liked by 1 person

      • They’ll get plenty of support at home. It’s the rest of the world that doesn’t care, ya know. I just hope my wife and I are enough, and give the right direction. Thanks for your kindness. You’re terrific! 😊

        Liked by 1 person

      • A good support from home makes a good shield at diffucult times. So I believe you’re gonna make it 😀

        Liked by 1 person

      • Time will tell I suppose. We will certainly try our hardest, that’s for sure. 😃

        Like

  10. You got this. You’ll find a way to help them find THEIR way. It’s a bit like shooting in the dark, but you’ll hit on it.

    It’s hard when you find that your kids are “different.” But how I look at it is – back in the day we didn’t have all these diagnostic tests or awareness…and now we do. So kids like yours and mine have the BEST chances of succeeding, because we can identify “neurological diversity” quicker and earlier than ever.

    Liked by 1 person

  11. I have worked with children with special needs for 10+ years, and have definitely run into many children that have memory issues. It takes a lot of practice and reinforcement to start to slowly make those connections again in their brain, but it is possible. You mentioned your oldest son has Autism, does he receive ABA services? They may be a good resource to reach out too.

    I can give my help best I can, but I would need a little more information such as what exactly about math is the struggles, what are his strong points, and does he struggle with memory in any other aspect of his life?

    You will get through this hump; it will be hard but it’s not impossible! Keep up the amazing work!

    Liked by 1 person

    • Thanks for the reply. Yes, my oldest gets ABA once weekly, primarily to address social deficits. The math issues are related to sequential memory, such as multiplication tables and things of that nature. He’s always struggled with math, but as he’s progressed in grades and had the accompanying increase in difficulty, it’s become dramatic. He tries, and hopefully with all he new info we are educating ourselves with we can find the right technique to use to improve his recall and retention. We won’t give up and do the work needed. Initially we were confused because we weren’t familiar with this diagnosis. We get more calm as we learn more. I’m an OT and I felt kinda dumb for not knowing more about this. The more I learn though, the less freaked out I’ve become. Please feel free to visit any time with info or tips. I’d love to be able to run questions past you at times, if you don’t mind.

      Liked by 1 person

  12. I can suggest that you try using mnemonics and “chunking” to aid in assisting your little guy in having the resources to recall things. I’ve got crazy memory issues myself due to my brain issues from my diseases and from having sustained multiple concussions. I’ve studied memory extensively in psychology. The best I can recommend is finding a tutor who is familiar with using these techniques and helping teach your boy how to figure out his own method of creating associations to help in the retrieval process. Did the shrink specify if he struggles with recording? I’ve got a million questions… I’d also recommended a second opinion. ALWAYS GET A SECOND OPINION. I wish you all the best with this! 😘 💋 ❤ M

    Liked by 1 person

    • His is mainly with math and a bit of reading retention. His ADD doesn’t help. We spent the past week or so just trying to get up to speed a bit on this. I’m less freaked out now. It seems as though there are techniques we can use. Found a site devoted to it from a psychologist that’s written extensively on the subject. I don’t have it in front of me now. I’ll send ya what we found when I get home this afternoon though. Thanks, I’ll certainly pick your brain a bit on this. 😃

      Liked by 1 person

  13. Oh dear. I just saw this post for the first time this morning during morning reflections, It was on my new phone, went to share it on facebook and my fat thumb sent it to “press this!” So now yes, it’s on my fb and wpsite and pressed! I hope you are okay with it. I am not sure how to retrieve it if you are not. In any event, at least you now have more exposure and maybe some “help” xox

    Like

    • I don’t mind at all. If we can gleem some good info from it, that’s a good thing. We’ve read quite a bit about it since that post and gotten good tips since. Thanks for reading it. I really appreciate all the caring and help from everyone. Gives me faith in humanity after all! 😃

      Liked by 1 person

  14. You actually make it appear really easy with
    your presentation but I find this topic to be actually something that I believe I might by no means understand.
    It sort of feels too complicated and extremely broad for me.

    I am taking a look ahead for your next post,
    I’ll try to get the hold of it!

    Like


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